Run for the Rare

Run for the Rare is a running event organized by Haley's Heroes Foundation, taking place in Salem, Oregon, on June 8, 2025. This event features a 10k, 5k, and a 1-mile fun run/walk, aimed at raising awareness for International Batten Disease Awareness Day. With 1 in 10 people affected by rare diseases, and many lacking FDA-approved treatments, the event seeks to bring attention to this critical issue.

Participants can join in a friendly competition while supporting a meaningful cause. Registration fees are $20 for high school students, and all participants are encouraged to share their experiences using the hashtag #RUNFORTHERARE. Visit the organization's website for the most recent information.